The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources that are available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to…
World Federation of Hemophilia USA
World Federation of Hemophilia USA: CEO salary, finances and where donations go
“Affiliated to the World Federation of Hemophilia an international charitable organization based in Montreal the mission of the World Federation of Hemophilia USA is to advance the global mission of WFH within the US to improve and sustain care for people with inherited bleeding disorders around the world…”
Data only Figures straight from the filing, screened by our rules. Not yet reviewed in depth by a CPA.
Methodology by Amir Arani, CPA, CA · Updated
- Revenue
- $1.10B 100% from donations and grants
- Spent
- $1.15B 100% on programs, as reported
- Net assets
- $377.3M end of 2024
- Savings
- 3.9 months of spending, net assets ÷ spending
1 thing to look at.
We screen every filing against twelve rules. A flag is a prompt for a closer look, not a finding of wrongdoing.
No whistleblower policy
No whistleblower policy on $1,095,526,264 of revenue.
Form 990 Part VI, line 13Of each dollar it spent, 100.0¢ went to programs, as reported.
For each dollar donated, World Federation of Hemophilia USA spent 0¢ on fundraising.
Fundraising ÷ $1.10B contributions · Form 990 Parts VIII, IXWhat it told the IRS it spent on.
The charity's own description of its largest programs, with what each cost.
The WFH Research and Data Collection Program includes the Annual Global Survey the World Bleeding Disorder Registry the Gene Therapy Registry and their accompanying education and capacity-building programs. The objective of this program is to provide National Member Organizations NMOs and Hemophilia Treatment Centers HTCs with the tools to increase their capacity the framework to collect data on people with bleeding disorders and the education and training to use that data to conduct research and advocate for better care. In accordance with the Collaboration Agreement between the WFH USA and…
Other programs include the Awareness Building and Travel Fund. This initiative is dedicated to increasing awareness about bleeding disorders in the United States and worldwide.
Net assets: $300K to $377.3M in 11 years.
Net assets at each fiscal year end, 2013 to 2024.
The questions people ask about the World Federation of Hemophilia USA.
Short, sourced answers. Each one stands on its own.
What percentage of World Federation of Hemophilia USA donations go to programs?
World Federation of Hemophilia USA reported 100% of 2024 spending as programs, 0% as fundraising and 0% as management.
Form 990 (2024), Part IXHow much money does World Federation of Hemophilia USA have?
Net assets were $377.3M at the end of 2024, about 3.9 months of spending.
Form 990 (2024), Part XDoes World Federation of Hemophilia USA have any red flags in its filing?
Its latest Form 990 triggered 1 of our twelve screening rules: no whistleblower policy. A flag is a prompt for a closer look, not a finding of wrongdoing.
Form 990 (2024)Every number, traced.
- World Federation of Hemophilia USA Form 990, 2024 (IRS e-file)
- World Federation of Hemophilia USA Form 990 history (ProPublica Nonprofit Explorer)
Amir Arani, “World Federation of Hemophilia USA: CEO salary, finances and where your dollar goes,” Charity Math, updated 2026-11-07. https://charitymath.com/charities/world-federation-of-hemophilia-usa/