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Charity Math
The 990 read · EIN 16-1513923 · NY · Fiscal year 2024

World Federation of Hemophilia USA

World Federation of Hemophilia USA: CEO salary, finances and where donations go

In its own words

“Affiliated to the World Federation of Hemophilia an international charitable organization based in Montreal the mission of the World Federation of Hemophilia USA is to advance the global mission of WFH within the US to improve and sustain care for people with inherited bleeding disorders around the world…”

Data only Figures straight from the filing, screened by our rules. Not yet reviewed in depth by a CPA.

Methodology by Amir Arani, CPA, CA · Updated

Revenue
$1.10B 100% from donations and grants
Spent
$1.15B 100% on programs, as reported
Net assets
$377.3M end of 2024
Savings
3.9 months of spending, net assets ÷ spending
Form 990 (2024), Parts I, VII, IX, X
01 · Red flags

1 thing to look at.

We screen every filing against twelve rules. A flag is a prompt for a closer look, not a finding of wrongdoing.

low

No whistleblower policy

No whistleblower policy on $1,095,526,264 of revenue.

Form 990 Part VI, line 13
02 · Where $1 goes · 2024

Of each dollar it spent, 100.0¢ went to programs, as reported.

The split the charity filed.
100.0¢
Programs, $1.15B
0.0¢
Fundraising, $60K
0.0¢
Admin, $123K
Form 990 (2024), Part IX, line 25
Cost to raise $1
0¢
as reported

For each dollar donated, World Federation of Hemophilia USA spent 0¢ on fundraising.

Fundraising ÷ $1.10B contributions · Form 990 Parts VIII, IX
03 · What it does

What it told the IRS it spent on.

The charity's own description of its largest programs, with what each cost.

Program 1 · 0.1% of program spending · $582K in grants $647K

The WFH Training and Education program provides the global bleeding disorders community with the information and tools required to improve access to diagnosis and ensure reliable access to safe treatment and care. Training and education may be delivered through healthcare development programs in-person and virtual workshops and educational events and the development and distribution of educational resources that are available in printed and electronic format. In accordance with the Collaboration agreement between WFH USA and the WFH WFH USA periodically grants contributions received to…

Program 2 · 0% of program spending · $140K in grants $155K

The WFH Research and Data Collection Program includes the Annual Global Survey the World Bleeding Disorder Registry the Gene Therapy Registry and their accompanying education and capacity-building programs. The objective of this program is to provide National Member Organizations NMOs and Hemophilia Treatment Centers HTCs with the tools to increase their capacity the framework to collect data on people with bleeding disorders and the education and training to use that data to conduct research and advocate for better care. In accordance with the Collaboration Agreement between the WFH USA and…

Program 3 · 0% of program spending $33K

Other programs include the Awareness Building and Travel Fund. This initiative is dedicated to increasing awareness about bleeding disorders in the United States and worldwide.

Form 990 (2024), Part III
04 · The savings

Net assets: $300K to $377.3M in 11 years.

Net assets at each fiscal year end, 2013 to 2024.

Net assets at year end, $ millions
0
0
0
1
1
1
1
1
1
1
437
377
Form 990 history via ProPublicaForm 990 (2024)
05 · Questions

The questions people ask about the World Federation of Hemophilia USA.

Short, sourced answers. Each one stands on its own.

What percentage of World Federation of Hemophilia USA donations go to programs?

World Federation of Hemophilia USA reported 100% of 2024 spending as programs, 0% as fundraising and 0% as management.

Form 990 (2024), Part IX

How much money does World Federation of Hemophilia USA have?

Net assets were $377.3M at the end of 2024, about 3.9 months of spending.

Form 990 (2024), Part X

Does World Federation of Hemophilia USA have any red flags in its filing?

Its latest Form 990 triggered 1 of our twelve screening rules: no whistleblower policy. A flag is a prompt for a closer look, not a finding of wrongdoing.

Form 990 (2024)
06 · Sources and citing

Every number, traced.

  1. World Federation of Hemophilia USA Form 990, 2024 (IRS e-file)
  2. World Federation of Hemophilia USA Form 990 history (ProPublica Nonprofit Explorer)
Cite this page

Amir Arani, “World Federation of Hemophilia USA: CEO salary, finances and where your dollar goes,” Charity Math, updated 2026-11-07. https://charitymath.com/charities/world-federation-of-hemophilia-usa/